ECPC Annual Congresses
ECPC Annual Congress 2018
8 - 10 June 2018
Many thanks to those who have successfully registered to the ECPC Annual Congress 2018.
We would like to remind you that Registrations have been closed.
Through this period we have received more than 185 applications, which only confirms that our annual event will be, yet again, the largest gathering of cancer patients in Europe!
Click here to register!
How can you contribute to the ECPC Annual Congress??
Grant Scholarships for young cancer survivors
* Send your nomination for a young cancer survivor explaining why this specific person deserves a scholarship and what is his/her story.
Open call to present your organisation
* Send us a Power Point presentation (no more than 3 slides), sharing your best practices, successes and/or challenges & get the chance to present at the Annual Congress 2018.
Bring your own materials and present them during the congress
* ECPC wants to make sure that each of its Members can be recognized during the congress, so please feel welcome to bring/send us any materials (posters, photos, leaflets, brochures), that you would like to show to other participants.
*If you have any questions related to the Annual Congress 2018, please feel free to contact us at any point!
The 2018 ECPC Annual Congress is supported by:
Documentation of the 2017 ECPC Annual General Meeting
ECPC Annual Meeting 2017
16 - 18 June 2017
Event organised under the high patronage of the European Parliament
and Her Royal Highness Princess Astrid, Belgium
Download the meeting handouts
General Meeting Agenda 16 - 17 June
General Assembly Agenda 18 June [ECPC Members Only]
Board and Audit Committee
List of Participants
Annual Report 2016
Financial Report 2016
Minutes of the 2016 ECPC AGM
Before the opening ceremony there were 3 pre-meetings, providing an opportunity for the ECPC Working Group on Rare Cancers (WGRC), ECPC Working Group on Bladder Cancer (WGBC) and ECPC Legal Network for Cancer Patients (LNCP) to meet face-to-face in order to strengthen future collaboration. The Working Group on Rare Cancers received a great deal of new interest, welcoming 13 new members.
Saturday 17 June encompassed a tightly packed agenda, kicking off with presentations on CanCon (Cancer Control Joint Action), introducing the European guide on quality improvement and covering expert recommendations on its uses, limitations and application at national level. The focus was then shifted to the topic of Nutrition; analysing the results of the ECPC Nutrition and Cancer patient survey and highlighting the importance of nutritional support for cancer patients.
After lunch, participants and speakers discussed increasing patient involvement in cancer research and treatment, during which the Memorandum of Understanding between ECPC and the European Organisation for Research and Treatment of Cancer was signed.
This session was followed by a new initiative where ECPC members were given the opportunity to share best practices and national experiences. During the discussion which followed it became apparent that this session was truly valued, by way of introducing our member organisations to one another and highlighting areas of work for potential collaboration.
This was followed by the discussion on cost-effectiveness in cancer research and care in reflection of a patient survey on financial issues surrounding cancer treatment. The final session of the day was on cancer rehabilitation and self-management, encompassing a talk on the benefits of behavioural therapy and physical exercise for people with cancer and a practical workshop on guided self-care relaxation and mindfulness; supporting our participants to wind down after an intensive, productive and fruitful day before heading into dinner.
Sunday 18 June was a closed session for members only; ECPC’s General Assembly. ECPC’s board presented the annual and financial reports, strategy for the upcoming year and requested ECPC members to vote to approve actions.
FRIDAY 16 JUNE - Opening Ceremony
ECPC's Achievements in the past year
- ECPC President, Board and Secretariat
ECPC's Policy Work
- Annalisa Trama, Coordination Team, Institutio Nazionale dei Tumori
The Joint Action on Rare Cancers
- Isabelle Huys:
Patient preferences in benefit-risk assessments
SATURDAY 17 JUNE - Annual Meeting
Panel I: Joint Action on Cancer Control
- Tit Albreht
European Guide on Quality Improvement in Comphrehensive Cancer Control
- Stefan Rauh
ESMO recommendations on survivorship
- Francesco De Lorenzo
How ECPC Members can use CanCon at the national level
- Mark Lawler
Policy paper on disinvestment
PANEL II - Nutrition
- Maurizio Muscaritoli
Results of the ECPC Nutrition and Cancer patient survey
- Alessio Molfino
Strategies to promote energy balance in people with cancer
- Francesco De Lorenzo
Nutritional support for cancer patients: still a neglected right?
PANEL III: Increasing patient involvement in cancer research and treatment
- Denis Lacombe
The importance of European clinical trials and how ECPC Members can get involved
- Françoise Meunier:
Cancer survivors should not pay twice
- Andrew Bottomley
Health-related quality of life issues facing people with cancer
Listening to ECPC Members
- Alma Zois
Defending the rights of cancer patients in Western Greece
- Association of Cancer Patients in Finland
Defending the rights of cancer patients - the Finnish way
- East Galway & Midlands Cancer Support
Defending the rights of cancer patients with The Step Study
Adopting & transposing ECPC cancer policy at national level
- European Lung Foundation
Lung cancer website
- Gliobastoma Multiforme Group
Placing childhood cancer care on the map
- Lung Cancer Europe
Defending the rights of Lung cancer patients
How to partner with decision-makers?
- Pembe Hanim and Metamazon
How solidarity and effective advocacy weathered the tamoxifen crisis in Turkey
- Hope and Life Association
Engaging the public in Cancer awareness campaigns
Cost-effectiveness in cancer research and care
- Wim H Van Harten
Patient survery on financial issues surrounding cancer treatment
- Neil K. Aaronson
The benefits of behavioural therapy and physical excercise for people with cancer
SUNDAY 18 JUNE - General Assembly Meeting
Francesco de Lorenzo
Provisional Minutes of the AGM (to be published soon)
The 2017 ECPC Annual Meeting was supported by: