Lydia Makaroff

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Lydia Makaroff is the Director of the European Cancer Patient Coalition. She has over ten years' international experience in non-communicable disease research and policy development in academia, the pharmaceutical industry, and the non-profit sector. She has conducted medical research at the Australian National University and the University of Washington. After working in Global Market Access at a pharmaceutical company, she joined the International Diabetes Federation as their Epidemiology and Public Health Manager. She has quantified the impact of non-communicable diseases, monitored national governments' commitments to health, provided capacity-building tools to Member Organisations, published policy papers, and worked with international institutions to advocate for change. Lydia holds a PhD in immunology and a Masters' degree in Public Health. She is also a Board member of Pancreatic Cancer Europe, an Associate Researcher at the Translational Immunology laboratory at the University of Leuven, and a member of the European Society for Medical Oncology. She is an Australian-Belgian dual national who speaks English and has a good knowledge of French.


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Isabelle Manneh-Vangramberen
Projects Coordinator

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Isabelle joined ECPC in 2016 as Projects Coordinator / Manager and, is currently the executive body for all EU funded projects. She holds a double Bachelor of Science in Pharmacy and Pharmaceutical Sciences, a Master degree in Public Health, in addition to a post-master in European Studies specialising in EU Policy & Project Management. Isabelle is the USAID Training Future Leaders Scholarship recipient, Golden Key International Honour Society member, and EUPATI Scholar. Her professional experience ranges from community based participatory research aiming at prevention in the area of Public Health to EU Policy, Project Mangement and the provision of Humanitarian Aid in conflict and post-conflict settings under the United Nations among others around the globe. She is a member of the Worldwide Innovative Networking (WIN) Consortium, the European Society of Medical Oncology (ESMO), Lead Patient Advisory Group member of  the IMI-PREFER, elected European Patient Advocay Group member and Co-Lead of the TTF Communications in the ERN for adult rare solid cancers. Isabelle is Romanian and identifies as a citizen of the world. She speaks fluent English, Romanian, Arabic, and has a good knowledge of French.


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Anna Rek
Community & Communications Manager

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Anna joined ECPC in January 2016 as our Community & Communications Manager. She holds a Masters' degree in Contemporary European Studies and European Politics from the University of Sussex in Great Britain. She gained her professional experience and got a deep understanding of a healthcare sector while she worked for 2 worldwide pharmaceutical companies followed by a practice in a Public Relations agency, where she was responsible for developing and implementing nationwide health and disease awareness campaigns accompanied by proactive and reactive media relations. Anna has a significant experience in supporting national patient organizations, such as Polish Cancer Patient Coalition, Melanoma Academy, Amazons, The Star of Hope Foundation or the Foundation of Social Education. Anna is a positive and committed Polish national, who speaks fluent Polish, English and has a good knowledge of French.




Jiska Bolhuis
Financial Officer

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With more than ten years of experience in the field of communication and project management (especially in the field of public policy contracts), Jiska has a large amount of experience in managing and coordinating budgets, contracts, people and events. As a Dutch national, she speaks Dutch and English fluently and has a good knowledge of German, French as well as some basic knowledge of Spanish.



Rafal Swierzewski
Associate Consultant

Rafal Swierzewski has been involved in patient advocacy for ten years as both a scientist and cancer survivor. He earned his PhD in 2006 by examining the physical and chemical properties of new chemotherapy compounds. He served on ECPC 's Board from 2013 to 2016. He currently represents the European Cancer Patient Coalition in the European Medicines Agency together with the Vice-President of the European Cancer Patient Coalition. Through the European Medicines Agency, he has been involved in various projects, such as Adaptive Pathways, ADVANCE and WEBRADR. Rafal also represents patients' interests in the European Union’s clinical trial portal and database of stakeholder groups created within the European Medicines Agency to construct new systems for implementing European regulations on clinical trials and clinical data. Rafal speaks Polish and English.