ECPC Annual Congresses

Each year, the European Cancer Patient Coalition organises an Annual Congress for its Members. See below an overview of all our gatherings since 2006! 

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Documentation of the ECPC Annual Congress 2018 

 ECPC Annual Congress 2018
8 - 10 June 2018
Hotel Renaissance
Brussels, Belgium

 
Download meeting handouts
Annual Congress Agenda 
Speakers' Bios
Board and Audit Committee
List of Participants
Annual Report 2017
Financial Report 2017 
Minutes of the 2017 ECPC AGM
Minutes of the 2018 ECPC Annual Congress (draft)
ECPC Statute 2018 (approved by ECPC General Assembly, pending publication in Belgian Gazette)
ECPC General Regulations 2018
Evaluation Form

View the photos here


From 8-10 June, 210 stakeholders from 156 organisations and 35 countries gathered in Brussels for the 2018 Annual Congress of the European Cancer Patient Coalition. Representatives from patient organisations, academia, health professionals, and industry met to discuss communication, health technology assessment, immuno-oncology therapy, and survivorship. Members of the European Cancer Patient Coalition were also selected to share their best practices, successes, and challenges.

The President of the European Cancer Patient Coalition, Francesco De Lorenzo, presented some of the Coalition’s successes in 2017. The Coalition actively participated in the European Commission public consultation on the future of Health Technology Assessment, were co-authors of the European Commission’s “CanCon European Guide on Quality Improvement in Comprehensive Cancer Control”, and successfully advocated for improvements to the World Health Organisation’s 2017 Cancer Resolution. The Coalition is very proud to be invited to join the European Commission's Innovative Partnership Action Against Cancer, which has just been launched. The European Cancer Patient Coalition is one of the few cancer patient organisations directly involved in research. In 2017, the Coalition was an active member of two Innovative Medicines Initiative projects, four Horizon 2020 projects, and one Seventh Framework Programme project.

“These results are an important achievement for all Members of the European Cancer Patient Coalition. The ultimate mission of our organisation is to listen to our Members and represent them at the European level.” said Francesco De Lorenzo, President of the European Cancer Patient Coalition. “Each one of our Members are essential for the work of our organisation, and I warmly thank all of them for their tireless work to support Europeans affected by cancer.”

In a session chaired by European Cancer Patient Coalition Vice President, Kathi Apostolidis, participants discussed the current situation and future EU cooperation on Health Technology Assessment. A draft online educational module for patient organisations, developed by the European Cancer Patient Coalition, was presented for feedback. Furthermore, there were presentations on reimbursement, how to create a win-win situation, and the European Commission’s proposal for stronger EU cooperation on Health Technology Assessment.

This event was held under high patronage of the Her Royal Highness Princess Astrid of Belgium, the European Parliament, and the European Commission. In a video message from the European Commissioner of Health & Food Safety, Vytenis Andriukaitis stated “Cancer patients across Europe regrettably face disparities and delays in accessing innovative technologies that work, therefore I think that the focus on Health Technology Assessment for this Annual Conference is excellent. This is a very important and very relevant issue. I believe that EU cooperation has clear potential to facilitate innovative technologies across Europe that truly provide patients with the best treatment available for their specific conditions. The European Parliament and Council are currently discussing the Commission’s proposal on HTA. This is the moment that the constructive input of the European Cancer Patient Coalition and all patient organisations is of crucial importance. I would like to thank you for your continued engagement and strong support on our HTA proposal.”

 

Speakers' presentations

FRIDAY 8 JUNE - Annual Congress

ECPC's Achievements in the past year

  • ECPC President, Board and Secretariat (Video to be uploaded)

Communicating with People affected by Cancer past


SATURDAY 9 JUNE - Annual Congress

Panel I: Health Technology Assessment (HTA) 

HTA online education module

Overall aims
Presentation of the animation
Introduction to the purpose of the session
Module Content Overview
Module structure, functionality and supporting booklet
“Guided Tour” of each chapter of the module

HTA and reimbursement

Overview of the European Commission’s HTA proposal

How to create a win-win solution

 

Panel II: Immuno-oncology therapies & molecular testing

The basics of tumour immunology

 Molecular testing in the era of personalised medicine

 

Panel III: Cancer Carers

ECPC White Paper on Cancer Carers

 Eurocarers Cancer Carers Toolkit, produced in collaboration with ECPC

 

Panel IV: ESMO-ECPC Survivorship Guide


ECPC Members share their best practices, successes and challenges

01. Czech Republic: Mamma Help 

02. Finland: PROPO

03. Greece: Alma Zois Athens

04. Greece: SYKAFIAR

05. Greece and Turkey: Karkinaki and Pembe Hanim #ECPC2018

06. Latvia

07. Poland: Polish Cancer Patient Coalition

08. Romania: Romanian Association for Services and Communication in Oncology (APSCO)

09. Spain: Spanish Organisation Against Cancer (AECC)

10. Turkey: Hope and Life Association

 


SUNDAY 10 JUNE - General Assembly Meeting

 Presentation of the 2017 Annual Report 

 Presentation of the 2017 Financial Report 

 

Message from EU Commissioner for Health Vytenis Andriukaitis to all ECPC Members

 

 The 2018 ECPC Annual Congress was supported by:

 AbbVie             

    

Genomic Health       Eli Lilly and Co      

                 

    

  TESARO logo 364x69

 

 

Documentation of the 2017 ECPC Annual General Meeting 

 ECPC Annual Meeting 2017
16 - 18 June 2017
Hotel Renaissance
Brussels, Belgium

Event organised under the high patronage of the European Parliament
and Her Royal Highness Princess Astrid, Belgium

 


 Download the meeting handouts

General Meeting Agenda 16 - 17 June
General Assembly Agenda 18 June [ECPC Members Only]
Speakers' Bios
Board and Audit Committee
Annual Report 2016
Financial Report 2016 
Minutes of the 2016 ECPC AGM
Evaluation Form

View the photos here


ECPC welcomed more than 180 participants to the 2017 Annual General Meeting. This yearly event has grown to become the largest patient gathering in Europe and this year had the pleasure of hosting participants from 141 different organisations from 42 different countries, offering a strong mix of knowledge, experiences and ideas.The event, which took place in Brussels from 16 - 18 June, included presentations from key activists in Oncopolicy, included input from members on national activities, much lively discussion, an interactive workshop and great networking opportunities.

Before the opening ceremony there were 3 pre-meetings, providing an opportunity for the ECPC Working Group on Rare Cancers (WGRC), ECPC Working Group on Bladder Cancer (WGBC) and ECPC Legal Network for Cancer Patients (LNCP) to meet face-to-face in order to strengthen future collaboration. The Working Group on Rare Cancers received a great deal of new interest, welcoming 13 new members.

The Opening Ceremony on the Friday 16 June welcomed all participants, introduced ECPC’s  Board members and Director and summarised ECPC’s achievements in the past year. This introductory session was followed by a gala dinner which promoted peer support and initiated cross-country networks.

Saturday 17 June encompassed a tightly packed agenda, kicking off with presentations on CanCon (Cancer Control Joint Action), introducing the European guide on quality improvement and covering expert recommendations on its uses, limitations and application at national level. The focus was then shifted to the topic of Nutrition; analysing the results of the ECPC Nutrition and Cancer patient survey and highlighting the importance of nutritional support for cancer patients.

After lunch, participants and speakers discussed increasing patient involvement in cancer research and treatment, during which the Memorandum of Understanding between ECPC and the European Organisation for Research and Treatment of Cancer was signed.

This session was followed by a new initiative where ECPC members were given the opportunity to share best practices and national experiences. During the discussion which followed it became apparent that this session was truly valued, by way of introducing our member organisations to one another and highlighting areas of work for potential collaboration.

This was followed by the discussion on cost-effectiveness in cancer research and care in reflection of a patient survey on financial issues surrounding cancer treatment. The final session of the day was on cancer rehabilitation and self-management, encompassing a talk on the benefits of behavioural therapy and physical exercise for people with cancer and a practical workshop on guided self-care relaxation and mindfulness; supporting our participants to wind down after an intensive, productive and fruitful day before heading into dinner. 

Sunday 18 June was a closed session for members only; ECPC’s General Assembly. ECPC’s board presented the annual and financial reports, strategy for the upcoming year and requested ECPC members to vote to approve actions.

ECPC is delighted with the success of the event showed, once again, that the patient voice is getting stronger.

Speakers' presentations

FRIDAY 16 JUNE - Opening Ceremony

ECPC's Achievements in the past year


SATURDAY 17 JUNE - Annual Meeting

Panel I: Joint Action on Cancer Control

 

PANEL II - Nutrition

 

PANEL III: Increasing patient involvement in cancer research and treatment

 

Listening to ECPC Members

Cost-effectiveness in cancer research and care

 


SUNDAY 18 JUNE - General Assembly Meeting


ECPC AGM 2017


 The 2017 ECPC Annual Meeting was supported by:

 

AbbVie        Amgen        AstraZeneca

 

Boehringer Ingelheim        BMS        Celgene

 

Genomic Health        Ipsen              J and J

 

 

Eli Lilly and Co            Novartis            Pfizer            Roche

 

 

 

 

 

Documentation of the 2016 ECPC Annual General Meeting

  

Læs mere: AGM 2016

The ECPC Annual General Meeting 2015 took place at the Renaissance Hotel in Brussels, Belgium, from the 19th to the 21st June.

Læs mere: AGM 2015

Documentation of the 2014 ECPC Annual General Meeting

 

Læs mere: AGM 2014

 

AGM Minutes 2013

 ECPC AGM 2012 Minutes

Læs mere: AGM 2012

 

ECPC AGM 2011 Minutes

 

ECPC financial report 2011

 

ECPC AGM 2010 Minutes

 

ECPC Annual Financial Report 2010

ECPC AGM 2009 Minutes

Læs mere: AGM 2009

 

2009 08 Audit Report 2008

 

ECPC financial report 2007

 

ECPC financial report 2006