ECPC Annual Congresses

Each year, the European Cancer Patient Coalition organises an Annual Congress for its Members. See below an overview of all our gatherings since 2006! 



ECPC Annual Congress and Annual General Meeting (AGM)

Renaissance Hotel, Brussels

7 – 9 June 2019

SocialMediaDay 2


Friday, 7th June

09:30 – 13:00 Pre-congress Workshops & Events


13:00 - 14:30 Registration (ROOM: Foyer 1)

14:30 – 15:00 Opening Session moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

Chaired by ECPC President, Francesco de Lorenzo

Welcome word by MEP Lieve Wierinck

15:00 – 15:30 European Commission Proposal on Health Technology Assessment Cooperation and Patient Involvement in HTA

Flora Giorgio, Head of Sector HTA, DG SANTE, European Commission

15:30 – 16:00 Coffee break and group photo

16:00 – 16:30 Work-Life Balance Directive and European Pillar of Social Rights, from regulation to implementation

Efi Anastasiou, European Commission, DG EMPL

16:30 – 17:00 The era of new advanced cancer diagnostics

Marc van den Bulcke, Head of Service, Cancer Centre, Sciensano 

17:00 – 17:30 Closing of the day

 19:00 - 22:00 Dinner (ROOM: Ball Room 1 + 2)


Saturday, 8th June

09:00 - 09:30 Registration to the Congress (ROOM: Foyer 1)

09:30 - 09:40 Introduction to the programme of the day moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

09:40 – 10:15 ECPC's highlights and achievements of the past year

ECPC President, Francesco de Lorenzo

10:15 - 11:00 Social Disparities & Work-Life Balance Directive moderated by Tamsin Rose   

Chaired by: Kathi Apostolidis, Vice-President ECPC and Francoise Meunier, Vice-President FEAM

  • Europe of Social Disparities

 Antonella Cardone, ECPC Director

 Roberto De Miro, Chair of the ECPC Legal Network for Cancer Patients

  • Embracing Carers

Mihaela Militaru, Senior Director, EU Patient Advocacy, Merck Group

11:00 - 11:30 Coffee Break (ROOM: Foyer 1)

11:30 - 13:00 Digital Health moderated by Tamsin Rose (ROOM: Ball Room 1 + 2)

Chaired by Ken Matris, ECPC Board Member


Roma Maguire, Professor of Digital Health and Care, University of Strathclyde

Introduction to Digital Health

Kathi Apostolidis, ECPC Board Member

13:00 - 14:30 Lunch buffet (ROOM:Lisbon/Madrid/Essen/Copenhagen/Warsaw)

14:30 - 15:30 Personalised medicine moderated by Tamsin Rose

(ROOM: Ball Room 1 + 2)

Chaired by Matti Järvinen, ECPC Board Member

European Liquid Biopsy Academy

Danijela Koppers-Lalic, VU Medical Center, Cancer Center Amsterdam

What is biobanking and why it matters to cancer patients? Diagnostics, genomics and personalized medicine

Francesco Florindi, Strategy and Partnership Manager, BBMRI-ERIC

15:30 - 16:00 Coffee break

16:00 – 16:30 HTA Educational module

Alex Filicevas, Head of EU Affairs, ECPC

16:30 – 17:00 Malnutrition and Cancer

Isabelle Manneh, Head of Health & Research Programmes, ECPC

17:00 - 17:30 Mindfulness-based cognitive therapy

 19:15 - 23:00 Dinner (ROOM: Ball Room 1 + 2)


Sunday, 9th June

09:00 - 10:00 ECPC Members share their best practices (ROOM: Ball Room 1 + 2)

Chaired by Maude Andersson, ECPC Board Member

10:00 - 10:30 ECPC Website and Social Media presentation

Clémence Morinière, Communication and Partnerships Manager, ECPC

10:30 – 11:00 Coffee break (ROOM: Foyer 1)

11:00 – 13:00 Annual General Meeting (AGM) (ROOM: Ball Room 1 + 2)

11:00 – 11:15 Introduction to the new Director and Activity Report

11:15 – 11:30 Financial Report, Audit Committee 

Pietro Presti, Audit Committee Chair, ECPC
Antonella Cardone, Director, ECPC

11:30 – 11:45 2019 Action Plan, Antonella Cardone, Director, ECPC

11:45 – 12:00 2019 Budget, Antonella Cardone, Director, ECPC

12:00 – 12:15 AGM Release of responsibility of the current board

12:15 – 12:45 The past President introduces the new board

12:45 – 13:00 Conclusions and closing of the AGM



 The 2019 ECPC Annual Congress is supported by



Genomic Health       Eli Lilly and Co      


Genomic Health       Eli Lilly and Co      



Documentation of the ECPC Annual Congress 2018 

 ECPC Annual Congress 2018
8 - 10 June 2018
Hotel Renaissance
Brussels, Belgium

Download meeting handouts
Annual Congress Agenda 
Speakers' Bios
Board and Audit Committee
List of Participants
Annual Report 2017
Financial Report 2017 
Minutes of the 2017 ECPC AGM
Minutes of the 2018 ECPC Annual Congress (draft)
ECPC Statute 2018 (approved by ECPC General Assembly, pending publication in Belgian Gazette)
ECPC General Regulations 2018
Evaluation Form

View the photos here

From 8-10 June, 210 stakeholders from 156 organisations and 35 countries gathered in Brussels for the 2018 Annual Congress of the European Cancer Patient Coalition. Representatives from patient organisations, academia, health professionals, and industry met to discuss communication, health technology assessment, immuno-oncology therapy, and survivorship. Members of the European Cancer Patient Coalition were also selected to share their best practices, successes, and challenges.

The President of the European Cancer Patient Coalition, Francesco De Lorenzo, presented some of the Coalition’s successes in 2017. The Coalition actively participated in the European Commission public consultation on the future of Health Technology Assessment, were co-authors of the European Commission’s “CanCon European Guide on Quality Improvement in Comprehensive Cancer Control”, and successfully advocated for improvements to the World Health Organisation’s 2017 Cancer Resolution. The Coalition is very proud to be invited to join the European Commission's Innovative Partnership Action Against Cancer, which has just been launched. The European Cancer Patient Coalition is one of the few cancer patient organisations directly involved in research. In 2017, the Coalition was an active member of two Innovative Medicines Initiative projects, four Horizon 2020 projects, and one Seventh Framework Programme project.

“These results are an important achievement for all Members of the European Cancer Patient Coalition. The ultimate mission of our organisation is to listen to our Members and represent them at the European level.” said Francesco De Lorenzo, President of the European Cancer Patient Coalition. “Each one of our Members are essential for the work of our organisation, and I warmly thank all of them for their tireless work to support Europeans affected by cancer.”

In a session chaired by European Cancer Patient Coalition Vice President, Kathi Apostolidis, participants discussed the current situation and future EU cooperation on Health Technology Assessment. A draft online educational module for patient organisations, developed by the European Cancer Patient Coalition, was presented for feedback. Furthermore, there were presentations on reimbursement, how to create a win-win situation, and the European Commission’s proposal for stronger EU cooperation on Health Technology Assessment.

This event was held under high patronage of the Her Royal Highness Princess Astrid of Belgium, the European Parliament, and the European Commission. In a video message from the European Commissioner of Health & Food Safety, Vytenis Andriukaitis stated “Cancer patients across Europe regrettably face disparities and delays in accessing innovative technologies that work, therefore I think that the focus on Health Technology Assessment for this Annual Conference is excellent. This is a very important and very relevant issue. I believe that EU cooperation has clear potential to facilitate innovative technologies across Europe that truly provide patients with the best treatment available for their specific conditions. The European Parliament and Council are currently discussing the Commission’s proposal on HTA. This is the moment that the constructive input of the European Cancer Patient Coalition and all patient organisations is of crucial importance. I would like to thank you for your continued engagement and strong support on our HTA proposal.”


Speakers' presentations

FRIDAY 8 JUNE - Annual Congress

ECPC's Achievements in the past year

  • ECPC President, Board and Secretariat (Video to be uploaded)

Communicating with People affected by Cancer past

SATURDAY 9 JUNE - Annual Congress

Panel I: Health Technology Assessment (HTA) 

HTA online education module

Overall aims
Presentation of the animation
Introduction to the purpose of the session
Module Content Overview
Module structure, functionality and supporting booklet
“Guided Tour” of each chapter of the module

HTA and reimbursement

Overview of the European Commission’s HTA proposal

How to create a win-win solution


Panel II: Immuno-oncology therapies & molecular testing

The basics of tumour immunology

 Molecular testing in the era of personalised medicine


Panel III: Cancer Carers

ECPC White Paper on Cancer Carers

 Eurocarers Cancer Carers Toolkit, produced in collaboration with ECPC


Panel IV: ESMO-ECPC Survivorship Guide

ECPC Members share their best practices, successes and challenges

01. Czech Republic: Mamma Help 

02. Finland: PROPO

03. Greece: Alma Zois Athens

04. Greece: SYKAFIAR

05. Greece and Turkey: Karkinaki and Pembe Hanim #ECPC2018

06. Latvia

07. Poland: Polish Cancer Patient Coalition

08. Romania: Romanian Association for Services and Communication in Oncology (APSCO)

09. Spain: Spanish Organisation Against Cancer (AECC)

10. Turkey: Hope and Life Association


SUNDAY 10 JUNE - General Assembly Meeting

 Presentation of the 2017 Annual Report 

 Presentation of the 2017 Financial Report 


Message from EU Commissioner for Health Vytenis Andriukaitis to all ECPC Members


 The 2018 ECPC Annual Congress was supported by:



Genomic Health       Eli Lilly and Co      



  TESARO logo 364x69



Documentation of the 2017 ECPC Annual General Meeting 

 ECPC Annual Meeting 2017
16 - 18 June 2017
Hotel Renaissance
Brussels, Belgium

Event organised under the high patronage of the European Parliament
and Her Royal Highness Princess Astrid, Belgium


 Download the meeting handouts

General Meeting Agenda 16 - 17 June
General Assembly Agenda 18 June [ECPC Members Only]
Speakers' Bios
Board and Audit Committee
Annual Report 2016
Financial Report 2016 
Minutes of the 2016 ECPC AGM
Evaluation Form

View the photos here

ECPC welcomed more than 180 participants to the 2017 Annual General Meeting. This yearly event has grown to become the largest patient gathering in Europe and this year had the pleasure of hosting participants from 141 different organisations from 42 different countries, offering a strong mix of knowledge, experiences and ideas.The event, which took place in Brussels from 16 - 18 June, included presentations from key activists in Oncopolicy, included input from members on national activities, much lively discussion, an interactive workshop and great networking opportunities.

Before the opening ceremony there were 3 pre-meetings, providing an opportunity for the ECPC Working Group on Rare Cancers (WGRC), ECPC Working Group on Bladder Cancer (WGBC) and ECPC Legal Network for Cancer Patients (LNCP) to meet face-to-face in order to strengthen future collaboration. The Working Group on Rare Cancers received a great deal of new interest, welcoming 13 new members.

The Opening Ceremony on the Friday 16 June welcomed all participants, introduced ECPC’s  Board members and Director and summarised ECPC’s achievements in the past year. This introductory session was followed by a gala dinner which promoted peer support and initiated cross-country networks.

Saturday 17 June encompassed a tightly packed agenda, kicking off with presentations on CanCon (Cancer Control Joint Action), introducing the European guide on quality improvement and covering expert recommendations on its uses, limitations and application at national level. The focus was then shifted to the topic of Nutrition; analysing the results of the ECPC Nutrition and Cancer patient survey and highlighting the importance of nutritional support for cancer patients.

After lunch, participants and speakers discussed increasing patient involvement in cancer research and treatment, during which the Memorandum of Understanding between ECPC and the European Organisation for Research and Treatment of Cancer was signed.

This session was followed by a new initiative where ECPC members were given the opportunity to share best practices and national experiences. During the discussion which followed it became apparent that this session was truly valued, by way of introducing our member organisations to one another and highlighting areas of work for potential collaboration.

This was followed by the discussion on cost-effectiveness in cancer research and care in reflection of a patient survey on financial issues surrounding cancer treatment. The final session of the day was on cancer rehabilitation and self-management, encompassing a talk on the benefits of behavioural therapy and physical exercise for people with cancer and a practical workshop on guided self-care relaxation and mindfulness; supporting our participants to wind down after an intensive, productive and fruitful day before heading into dinner. 

Sunday 18 June was a closed session for members only; ECPC’s General Assembly. ECPC’s board presented the annual and financial reports, strategy for the upcoming year and requested ECPC members to vote to approve actions.

ECPC is delighted with the success of the event showed, once again, that the patient voice is getting stronger.

Speakers' presentations

FRIDAY 16 JUNE - Opening Ceremony

ECPC's Achievements in the past year

SATURDAY 17 JUNE - Annual Meeting

Panel I: Joint Action on Cancer Control


PANEL II - Nutrition


PANEL III: Increasing patient involvement in cancer research and treatment


Listening to ECPC Members

Cost-effectiveness in cancer research and care


SUNDAY 18 JUNE - General Assembly Meeting


 The 2017 ECPC Annual Meeting was supported by:


AbbVie        Amgen        AstraZeneca


Boehringer Ingelheim        BMS        Celgene


Genomic Health        Ipsen              J and J



Eli Lilly and Co            Novartis            Pfizer            Roche






Documentation of the 2016 ECPC Annual General Meeting


Læs mere: AGM 2016

The ECPC Annual General Meeting 2015 took place at the Renaissance Hotel in Brussels, Belgium, from the 19th to the 21st June.

Læs mere: AGM 2015

Documentation of the 2014 ECPC Annual General Meeting


Læs mere: AGM 2014


AGM Minutes 2013

 ECPC AGM 2012 Minutes

Læs mere: AGM 2012


ECPC AGM 2011 Minutes


ECPC financial report 2011


ECPC AGM 2010 Minutes


ECPC Annual Financial Report 2010

ECPC AGM 2009 Minutes

Læs mere: AGM 2009


2009 08 Audit Report 2008


ECPC financial report 2007


ECPC financial report 2006